Showing posts with label Down Syndrome. Show all posts
Showing posts with label Down Syndrome. Show all posts

Sunday, June 22, 2014

Looking Back: Sarah Palin as McCain’s VP – 2008 OpEd

Tripp and Uncle Trig

Tripp Palin Johnston and His Uncle Trig Palin

Washington Times: Amid the speculation regarding John McCain’s choice to complete his presidential ticket, I offer my unsolicited suggestion for his vice president: the first woman — and youngest — governor of Alaska, Sarah Palin, who is an unstereotypical and effective Republican.

During her first year in office, as reported by the Associated Press on May 10, she “distanced herself from the old guard, powerful members of the state GOP (and) stood up to the oil interests that hold great power in Alaska, and with bipartisan support in the statehouse, she won a tax increase on the oil companies’ profits.” Last December, this mother of four children, Mrs. Palin, four months’ pregnant, found she was going to have a child with Down syndrome — a condition characterized by moderate-to-severe mental retardation. A school friend of one of my sons had Down syndrome; I have also known functioning adults with the extra chromosomes of that syndrome.

However, as a longtime reporter on disability rights, I have discovered that many fetuses so diagnosed have been aborted by parents who have been advised by their doctors to end the pregnancies because of the future “imperfect quality of life” of such children.

Mrs. Palin’s first reaction to the diagnosis was to research the facts about the condition, since, as she said, “I’ve never had problems with my other pregnancies.” As a result, she and her husband, Todd, never had any doubt they would have the child.

“We’ve both been very vocal about being pro-life,” she told the Associated Press. “We understand that every innocent life has wonderful potential.” In an age when DNA and other genetic-selection tests increasingly determine who is “fit” to join us human beings, we are witnessing the debate between sanctity of life vs. quality of life being more often decided in favor of death. This is a result welcomed by internationally-influential bioethicist Peter Singer. He is now a celebrated Princeton University professor, who, in July 1983, wrote in Pediatrics, the official Journal of the American Academy of Pediatrics: “If we compare a severely defective human infant with a nonhuman animal, a dog or pig, for example, we will often find the nonhuman to have superior capacities, both actual and potential, for rationality, self-consciousness, communication, and anything else that can plausibly be considered morally significant.” And there are bioethicists who point to the continuing costs of rearing a “defective infant.”

By inspirational contrast, Mrs. Palin, says of her new son, Trig: “I’m looking at him right now, and I see perfection. Yeah, he has an extra chromosome. I keep thinking, in our world, what is normal and what is perfect?” Three days after she gave birth, Mrs. Palin was back in her Anchorage office with her husband and Trig. “I can think of so many male candidates,” she tells the AP, “who watched families grow while they were in office. There is no reason to believe a woman can’t do it with a growing family. My baby will not be at all or in any sense neglected.” Says the governor of Alaska: “I will not shirk my duties.” Taking her stand for life as a holder of high political office is all the more valuable in the face of the termination of fetal lives as not worth continuing before they can speak for themselves. Mrs. Palin’s stand also puts a searching light on the growing “futility” doctrine in hospitals which is affecting people of all ages.

Nancy Valko, a medical ethicist and intensive-care nurse I consult on these lives-worth-living debates, has emphasized that “with the rise of the modern bioethics movement, life is no longer assumed to have the intrinsic value it once did, and ‘quality of life’ has become the overriding consideration.” Because of Mrs. Palin’s reputation as a maverick, and her initial reduction of state spending (including pork-barrel spending), life-affirming Palin connects with voters. For these reasons, she has been mentioned as a possible vice presidential running mate for Mr. McCain.

She would be a decided asset: an independent Republican governor, a woman, a defender of life against the creeping culture of death and a fresh face in national politics. She was described in “the Almanac of National Politics” as “an avid hunter and fisher with a killer smile who wears designer glasses and heels, and hair like modern sculpture.” Moreover, I doubt that she would engage in such campaigning, as Sen. McCain’s strongly implying that a Hamas terrorist saying he would like Barack Obama to be president thereby damages Mr. McCain’s opponent (though Mr. Obama has totally condemned Hamas). Still unknown is whether Mrs. Palin would be as flip-flopping as Mr. McCain on the Bush torture policy that has so blighted our reputation in the world. But we would find out: If chosen as his running mate, she would create more interest in this already largely scripted presidential campaign.

And her presence could highlight Mr. Obama’s extremist abortion views on whether certain lives are worth living — even a child born after a botched abortion.  

Governor Palin: An Extra Chromosome of Love

trig(palin_3

Trig Palin Age 3 

Gov. Palin: Trig is getting a buddy!

Saturday, October 26, 2013

Governor Palin: An Extra Chromosome of Love

Governor Palin promoted Down Syndrome Awareness Month by posting the following photos and comments  on her Facebook page yesterday:

Sarah Palin

I’m grateful for those with a heart of love for those who have that extra chromosome; we refer to it as “an extra chromosome of love!” And adding to Bristol’s collection of pictures on her blog during Down Syndrome Awareness Month, here’s one of our boys.

I'm grateful for those with a heart of love for those who have that extra chromosome; we refer to it as "an extra chromosome of love!" And adding to Bristol's collection of pictures on her blog during Down Syndrome Awareness Month, here's one of our boys.

Trig Palin and his nephew, Tripp Palin Johnston, Bristol’s son

Photo: I'm grateful for those with a heart of love for those who have that extra chromosome; we refer to it as "an extra chromosome of love!" And adding to Bristol's collection of pictures on her blog during Down Syndrome Awareness Month, here's one of our boys.<br /><br />Here’s the link to Bristol’s blog post:<br />http://www.patheos.com/blogs/bristolpalin/2013/10/an-unexpected-joy-for-a-marines-family-meet-wyatt-chesser/

Governor Palin with son Trig and Hubby Todd as Todd got ready for the 2013 Iron Dog Race last February

Here’s the link to Bristol’s blog post: Patheos

Supreme Court Unexpectedly Upheld Regulatory Elimination of Down Syndrome

Sunday, February 5, 2012

Life With Trig: Sarah Palin on Raising a Special-Needs Child

By former Alaska Governor Sarah Palin  -  Reprinted in its entirety from the Daily Beast

Last week, Rick Santorum and his family offered us a reminder of what really matters. When his 3-year-old daughter, Bella, born with Trisomy 18, was hospitalized with pneumonia, Rick left the campaign trail to be by her bedside. In the middle of this very heated campaign season, many of us prayed through tears for Bella’s health and added prayers of thankfulness for a public example of someone’s sacrifice made with the right priorities.

santorum-and-Bella

It’s a sacrifice every parent and caregiver of a child with special needs sympathizes with. Families of children with special needs are bonded by a shared experience of the joys, challenges, fears, and blessings of raising these beautiful children whom we see as perfect in this imperfect world.

During the 2008 presidential campaign, on rope lines at rallies across the country, my husband, Todd, and I met so many of these families and caretakers, and I’ll never forget them. There was an instant connection—a kind of mutual acknowledgment that said, “Yes, these children are precious and loved. Yes, we face extra fears and challenges, but our children are a blessing, and the rest of the world is missing out in not knowing this.”

Every parent struggles with juggling the commitments of work and family. Women, especially, know this well. Over the years, I’ve learned that women can “have it all,” just not all at once. For me, it was a lesson learned through the school of hard knocks, but it was one my own mother made me aware of when she calmly told me that as a working mom in the rough-and-tumble political arena, I would have to make tough choices. We all do. In making decisions about my career, I’ve put my family first, and I’ve never regretted it, although it has meant periodically putting particular pursuits on the back burner.

When I discovered early in my pregnancy that my baby would be born with an extra chromosome, the diagnosis of Down syndrome frightened me so much that I dared not discuss my pregnancy for many months. All I could seem to muster was a calling out to God to prepare my heart for what was ahead. My prayers were answered beyond my shallow understanding of what true joy could be. Yes, raising a child with special needs is a unique challenge, and there’s still fear about my son Trig’s future because of health and social challenges; and certainly some days are much more difficult than if I had a “normal” child.

Sarah Palin and Tea Party Express Stops in Phoenix

Sarah Palin with her son, Trig., Jack Kurtz / ZUMA-Corbis

Many everyday activities like doctor’s appointments and social gatherings and travel accommodations and even mealtimes and a solid night of sleep are that much more difficult, but at the end of the day I wouldn’t trade the relative difficulties for any convenience or absence of fear. God knew what he was doing when he blessed us with Trig. We went from fear of the unknown to proudly displaying a bumper sticker sent to us that reads: “My kid has more chromosomes than your kid!” He may not be the next Wayne Gretzky, but our hearts are filled with so much pride watching Trig giggle with his sisters’ puppies, or sway to the rhythm of his Little Angels DVDs, it’s as if he were hoisting the Stanley Cup.Granted, I know I may be more fortunate than others to have loving friends and a big, supportive family I call on to help, including a husband who spends many sleepless nights with this restless little one. (And Todd actually makes Trig’s puréed baby food!) Others aren’t so fortunate, and in our thankfulness I am made more compassionate toward others who have less.I often think now, what would we do without Trig? He’s our “everything that really matters.”Trig is almost 4 years old now, and every morning when he wakes up, he pulls himself up, rubs the sleep out of his eyes, looks around, and then starts applauding! He welcomes each day with thunderous applause and laughter. He looks around at creation and claps as if to say, “OK, world, what do you have for me today?”

My family knows that Trig will face struggles that few of us will ever have to endure, including people who can be so cruel to those not deemed “perfect” by society. The cruelty is more than made up for, though, when someone simply smiles at our son. Nothing makes me prouder. As I explained in a Thanksgiving article, I notice it happens often in airports. Travelers passing by will do a double-take when they see him, perhaps curious about the curious look on his face; or perhaps my son momentarily exercises an uncontrollable motion that takes the passerby by surprise. Perhaps, as an innocent and candid child announced when she first met Trig, they think, “He’s awkward.” But when that traveler pauses to look again and smiles, and maybe tells me what a handsome boy I have, I swell with pride. I am so thankful for their good hearts. They represent the best in our country, and their kindness shows the real hope we need today.

My family understands that up ahead, some days will be better than others. We will adapt and juggle things and work through it. But Trig applauds the day. And that’s what he teaches us. That’s our priority, and we’re blessed by it.

*Both these politicians have a personal stake in overturning ObamaCare which includes rationing of healthcare, whatever your choose to call it.

Related:

Team Up for Down Syndrome

Monday, October 20, 2008